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Care and Support Jargon Buster

The Care and Support Jargon Buster is a plain English guide to the most commonly used social care words and phrases and what they mean. The definitions are plain English rather than legal, and were developed and tested by a steering group that included people who use services, carers, representatives from local authorities, information providers and key stakeholders from across the social care sector. 

Cardiac Monitoring in Acetylcholinesterase Prescribing

Crowther G, Javed N, Alderson J, Cashman E, Mitra L, Dinsdale E, Acosta A. Read the full paper here

Cardiac Monitoring in AChEI's

What is the evidence base to support an assumption that everyone with dementia needs an ECG prior to commencing AChEIs Read the full paper here.  

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DementiaCarer.Net 

Carers of people living with dementia talk about what helps them, what to do when things get tough, and where to find support. Visit www.dementiacarer.net for more information.  (Jason – this is the site with the videos we discussed on Friday)

DiADeM - Diagnosis of Advanced Dementia Mandate (for use in care home setting)

This link takes you to a new protocol to support diagnosis of dementia for people living with advanced dementia in a care home setting, without the need for referral to specialist/memory services. 


We would like to thank Dr Graeme Finlayson, Bradford District Care NHS FT and Dr Subha Thiyagesh, South West Yorkshire Partnership NHS FT for sharing their protocols on which this tool is based.

DementiaDO

DementiaDO…the basics successfully incorporates the 5 key messages from Dementia Friends information sessions and the additional learning needs of NHS staff requiring Tier 1 training. This is the first time a joint package has been produced which is endorsed by both Public Health England (for Tier 1) and the Alzheimer’s Society (for Dementia Friends). Developed by Andy Tysoe – a Memory Nurse based at the Countess of Chester Hospital, training is delivered with an infectious enthusiasm. Andy is passionate about spreading a better understanding about dementia throughout the whole community.

Dementia 2015: Aiming Higher to Transform Lives

Two-thirds of people with dementia live in the community of these, one-third live alone in their own homes. Unpaid carers save the state £11 billion per year. While recognition of family carers has increased, in reality access to sufficient support and assessment of their own needs is still inadequate.

This report provides a snapshot of how well people are living with dementia, what support they are receiving and what barriers they face to living well. It makes practical recommendations to the new government on the steps that need to be taken to make quality of life better for people with dementia. 

Dementia in a Nutshell

Download Dementia in a nutshell. An information sheet detailing important principles about dementia.

Dementia Quality Toolkit

The Dementia Quality toolkit is a set of system searches (and supporting documentation) for general practice to help practices identify patients who have Read/CTv3 codes in their notes that may suggest dementia but who have no corresponding dementia diagnosis.

This webinar  explains how the toolkit works and answers some frequently asked questions. Our thanks to Yorkshire and Humber colleagues for its development.

Dementia Words Matter

Visit http://www.dementiaaction.org.uk/dementiawords/resources to learn more about the recent call to action from people living with dementia

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House of Memories

The award winning House of Memories is based at the Museum of Liverpool and targets carers, health and social care providers to help them deliver a positive quality of life experience for people living with dementia. The training programme provides participants with information about dementia as well as skills and resources for practical memory activities. They have developed an app which allows people to explore objects from the past and share memories together. For more information click this link: www.lifestorynetwork.org.uk 

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Life Story Network

The Life Story Network is a registered Community Interest Company who help develop, deliver and promote improvements to the quality of care and support received by working closely with care providers, carers, housing associations, transport providers, schools and advocacy groups.

The also host the TIDE (Together in Dementia Everyday) Network which supports carers of people with dementia. More information about the Life Story Network and TIDE can be found here: www.lifestorynetwork.org.uk

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Medicines Management

Download the cost of drugs for treatment of Alzheimer’s disease. This was developed by Elly Wakeling MFRPSII MRPharmS IPMedicines Optimisation Pharmacist, and Dr Wendy Burn, Consultant Old Age Psychiatrist. 

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Neuroimaging Guidance in Dementia

This guidance has been written by the Yorkshire and Humber Strategic Clinical Network for Dementia working group which included old age psychiatrists, physicians, radiologists and a GP.

The purpose is to advise clinicians in primary and secondary care on the role of neuro-imaging in the assessment of dementia. It addresses the questions of when neuro-imaging should be undertaken and which scan should be requested. It also emphasises the importance of providing detailed information on request forms to obtain the best reports.


North Guidance on Dementia and Delirium Coding 

This guidance document is prepared for use across the North region to provide a consistent way of coding dementia and delirium in GP practices. It was agreed by members of the north regional mental health, dementia and neurological conditions oversight group on Monday 28th July 2014 to use central guidance as the regional standard. Further changes were included following circulation to dementia clinical leads of north strategic clinical networks and the development of a CSU data quality tool to assist in data cleansing. The guidance continues to be refined as comments are received from users of this guidance. Most recent additions include guidance on the coding of delirium. Jason can you download the link

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ONS Population Projection Changes on Dementia Diagnosis Rates (Impact on)

The national diagnosis rate for people with dementia as at end of April was 66.4% (down by 1.1% from March). The decrease maybe due to the changeover to using 2016/17 ONS population estimates which increased estimated dementia prevalence.  More information here 

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PG Cert for Practitioners with a Special Interest in Dementia

For more information about the PG Cert for Practitioners with a special interest in dementia follow this link.

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Sleep Matters

Sleep matters is a time limited pilot which was set up to see whether volunteers in the community could administer non – pharmacological interventions, to improve the quality of sleep for people with dementia and their carers.The pilot was funded by the Integrated Commissioning Board for Health and Wellbeing Innovation Fund 2014/2015. Additional support and funding was provided by the Salford Healthy Communities Long Term Conditions team. Click here to read the report or contact Linda.Henry@uni.uk.net for more information. Jason can you download the link

Sustainable Transformation Plans (STPs)

Please click here for advice from Alistair Burns on what might be included in the dementia part of the upcoming STP submission. This slide summerises the situation.

SURF

The Liverpool Service User Reference Forum (SURF) is a group of people who represent the views of people living with, their carers and families across the City of Liverpool. Their vision is to improve the quality of life for people living with dementia, their carers and families and also to make Liverpool a dementia friendly city. For more information click the following link: https://surfdementia.org

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What Could Really Make a Difference Leaflet

This leaflet, developed by Year of Care Partnerships, was designed to be used as part of the Year of Care review process. It helps people who are living with a long-term condition to think about how things are working for them at that point in time and what could really make a difference for them. It is intended to be completed with input from family and carers where appropriate. Please take your time to think through the questions and write down any thoughts and ideas you have. This leaflet has been included as an integral part of the QOF dementia annual review template to support patients and carers to actively contribute to the development of a care plan in conjunction with their clinician.

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