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National Documents and Useful Links

National Documents

Dame Cicely Saunders, the founder of the modern hospice movement said:

"You matter because you are you, and you matter to the end of your life."

As we commemorate the tenth anniversary of her death, this quote remains as relevant as ever.

Eol2.pngEvery moment counts because, once passed, it can never be regained.

This narrative is an important milestone. It has been carefully and painstakingly produced under the leadership of National Voices working in partnership with National Council for Palliative Care and other organisations. It tells us, unequivocally, what person centred care means from the point of view of someone approaching the end of life. We use this narrative as the centrepiece for NHS England’s Actions for End of Life Care.   

 

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What's Important to me; A Review of Choice in End of Life Care, a report published by The Choice in End of Life Care Programme Board, identifies the issues people approaching the end of life are currently facing and offers a blueprint for how greater choice in end of life care can be achieved.

 

 

 

 

 

 

 

 

 

 

 

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Useful Links

Ambitions for End of Life Care: A national framework for local action

Care Quality Commission

Dying Matters - raising awareness of dying, death and bereavement

End of Life Partnership

Marie Curie Palliative Care Institute

Mental Capacity Act 2005 - Code of Practice 

NHS Citizen

The National Council for Pallative Care

The National End of Life Care Intelligence Network

Palliative Care for People with Learning Disabilities Network

North West Ambulance Service

NICE - Care of the Dying Adult in the Last Days of Life Guidelines December 2015