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Patients and the public making a difference to our work

20th August 2018

Bob_Giles.jpgWe can’t over-emphasise how important and invaluable the support we receive from our People’s Voice members is. Many patients and members of the public give their time freely and voluntarily to help make a difference, through representation on development and sub-groups and in a whole variety of other ways.

Bob Giles is one such member. Bob is a volunteer in the Palliative Care inpatient unit at Royal Liverpool Hospital and recently became a volunteer at Wirral Hospice. He has been a committed member of the Palliative and End of Life Care People’s Voice sub-group since January 2016, involved in the development of many pieces of work.

His involvement began after coming along to an information day to learn more about our work, and our People’s Voice End of Life sub-group was formed soon after, as part of our network infrastructure.

In response to a bereaved relatives’ survey People’s Voice  developed a  dual standard (minimum and gold) Bereavement Specification. The specification provides service improvement recommendations to acute trusts when reviewing their bereavement services to help them provide excellent support for families and carers at the time of bereavement. Bob, along with other People’s Voice members, were shortlisted in the Patient Partnership category of the 2018 BMJ Awards for this piece of work.

Notably, Bob was a member of the group that produced clinical guidelines for the Monitoring and Management of Diabetes at the End of Life, used by the specialist palliative care teams. He travelled to London in November 2017 to accept our certificate on behalf of the Audit and Clinical Guidelines Group as a shortlisted finalist in AbbVie’s Sustainable Healthcare Awards.

I am proud to be a member of the outstanding Palliative and End of Life Care People’s Voice group in Cheshire and Merseyside. I am pleased to have been able to input into the development of the bereavement specification, which is such an important piece of work.

Bob also presented at Wirral’s Shared Decision Making in End of Life Care Conference in February 2018, for which he received heartfelt thanks from the clinical staff at Wirral Hospice. We echo the thanks and gratitude of Dr Richard Latten, Consultant in Palliative Medicine at Wirral Hospice St Johns, who said:

“… my sincere thanks for giving your valuable time and for your much-appreciated efforts speaking at our conference. We were most grateful for your contribution. The event proved to be a success and the evaluations were very positive from those present.”

Bob said:

“I am proud to be a member of the outstanding Palliative and End of Life Care People’s Voice group in Cheshire and Merseyside. I am pleased to have been able to input into the development of the bereavement specification, which is such an important piece of work.”

For more information on joining the People’s Voice across any of our networks, please contact us at england.nwcscnbst@nhs.net or visit the People’s Voice section of our website. We welcome applications from individuals, as well as voluntary sector and charity representatives.

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